by Sheri
(n.stonington CT)
Mri ruled out lower back issue for years I was told cervical instability i (as a result of chiari decompression surgery) was the cause.i also have many otber issues..low o2 with excersize but PFT shows not a lung issue. I am on oxegen though rarely ware...only at night with my bi pap.I also have mixed apnea. I am 47. My legs are worse when I lay or sit....arms have some issues but mild in comparing to legs. At night my legs will jerk in a downward motion sometimes. Muscles twitch at night. I have little to no hot cold sensation. The neurosurgeon I went to said emg is fine...not snerve issue. There are times I scald legs in hot bath trying to get them to stop hurting...it helps.The dr did find puddle of bone marrow in my hip...with increased eruthropotin in blood levels increased. When i read oxygen deprivation...it does not fit..never just calf...always entire legs..please help
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