Another case of undiagnosed hip dysplasia
(Chicago, IL, USA)
I was diagnosed with dysplasia at 38 after a couple of years of weakness and a "weird unstable feeling". The ortho did not mention Peri Acetabular Osteotomy as a possible option, so now arthritis and large subchondral cysts have set in and it's too late for a corrective procedure. I had no pain or issues as a kid, did gymnastics and danced on it for years. How can this be?????
I am resigned to needing a hip replacement, but I'm scared to do it at 41. Won't I need another one in 20 years? Or sooner? What if that one fails? Will I end up in a wheelchair at 70? Will the cysts (which continue to grow in size) affect the outcome of the bone union? Aren't they weakening my entire hip joint?
I have given up step aerobics and will soon give up my 2-inch work heels. I don't have any radiating or aching, numbness or tingling. I can sleep well. But walking gives me grinding pain in my joint with every step. I haven't started taking meds yet because I've read they can damage cartilage further.
I am using prolotherapy and PRP, though, started in December. Haven't noticed much improvement yet after 2 treatments. Is there anything I can do to relieve my pain and put this off? What about correcting my posterior pelvic tilt? I know it won't correct the structural deformity, but will it help the pain, maybe?
So heartbroken about this. Feel like I've lost my youth. I've started doing the exercises on this site. Is there anything else that I can do? Grateful for any advice.
Cara Hello Cara,
Missed diagnoses are always distressing, so we share your distress; having said that, the past is set in concrete, and it's best to focus on the future. I know it's easier said than done, but crying over spilled milk has no merit.
Yes, you are right, a second and even third surgery is a distinct possibility.
First, an important point; this is hereditary. Your children may be lucky and have inherited your husband's hips, but maybe not. If there is ANY sign of that instability that you felt, any "growing pains" in the upper leg and groin (often referring to the knee) then you absolutely must have an xray of their pelvis' done; buttock pain too.
Early diagnosis means that exercises can be started now, and an acceptance that running, gymnastics, vigorous dancing and aerobics are not for them. One of the tragedies is that children with dysplasia are hypermobile, making them able to excel in these sports; but you don't want them where you are ten years' time.
Secondly, have your leg length assessed. Dysplasia, PLUS a short leg, is a disaster. A simple, inexpensive insert inside the shoe is usually adequate, but you'll need professional advice on whether it should be the whole shoe, or just the heel, and how thick. This applies to your children too. A leg length inequality leads to a higher incidence of hip arthritis.
Thirdly, if you are significantly overweight, get it off. It's vital. Double the fruit and salad in your diet, and cut out the crap. See our Modified Banting diet.
Fourthly, start swimming and cycling regularly. They can be boring, but important; think of it like brushing your teeth.
Next, start making a chicken bones bouillon regularly; use the search function in the nav bar on your left. Extract the cartilage and use it to make a soup. Every week for the rest of your life; it's delicious in any case. Get a stainless steel pressure cooker if you don't have one.
Take omega 3 oil for life; better still eat fatty fish every week.
Fifthly, start looking for a chiropractor who is interested in, and specialises in hips; you may battle. Don't accept a blase, yes of course I treat hips.
Could you send me a copy of your xray to brlewisatmwebdotcodotsa please.
Be strong, Cara; you can cope with this below the belt blow.